Rapid, diverse and meaningful real world patient insights to accelerate patient access and understand patient needs.
Rapid, diverse and meaningful real world patient insights to accelerate patient access and understand patient needs.
Our team of experts can help enable you to better understand and have more meaningful engagment with patients, patient groups, healthcare professionals & key opinion leaders
We support the entire life-cycle of Research & Development and Commercial Access. Since patients are the end-users, we focus on understanding the diverse needs of patient together with their experiences, pathways, views and challenges to enable better support and access. We do this directly with patients and by working through Healthcare Professionals, Key Opinion Leaders and Patient Groups.
Understand the indication landscape, treatment pathway options and patient / healthcare need to enable better decision-making and determine priorities.
Access insights, educate patients and build patient communities to enable faster patient recruitment across clinical trials.
Understand local markets, develop access strategies and support patients and healthcare professionals by working with patients and stakeholders to collect real world insights, experience data and journey maps.
Our medical and scientific approach enables us to develop precise and relevant research to ensure reliable insights and actionable results are collected, tailored to your specific objectives. Our digital expertise enables us to quickly reach diverse groups of patients, and our medical expertise enables us to build strong and lasting relationships with patients, patient groups, KOL’s and HCP’s.
Our patient panel creation & patient interview approach connects you with diverse patients to gather first-hand perspectives, uncover needs, and validate your healthcare solutions. Our targeted recruitment enables identification of hard to find patient profiles, offers meaningful interactions, and results in long-term participant involvement for impactful insights and results.
We offer a toolbox of digital patient recruitment, engagement and support tools designed to enhance patient access and care. Our solutions provide fast access to patients and HCP’s, enable longitudinal research, offer enhanced patient engagement and empower patients to more easily share their clinical development and healthcare journeys.
We always start a new project by understanding the research questions that need to be answered, and the objectives to be achieved. We work with all relevant stakeholders to produce insights and data that is relevant and meaningful for all.
Our strength is in the scientific and medical approach that we implement when designing research, and when engaging with patients, patient groups, KOL’s, HCP’s and pharmaceutical companies.
See real-world examples of our approach in action
2,837 patient survey completers in less than 30 days. Collected directly from patients.
2,463 patient and caregiver survey completers in less than 50 days. Collected directly from patients.
340 survey completers in 84 days. Collected directly from patients and caregivers in cooperation with university clinics.
2,300 patient survey completers in 45 days. Collected directly from patients.
17 completed surveys and patient interviews in 23 days. Collected directly from patients.
10 Patient Interviews and 5 Panel participants in 30 days. Collected directly from patients.
1,324 survey completers, 10 Patient Interviews in 11 days. Collected directly from patients.
15,824 survey completers in 51 days. Collected directly from patients.
1,860 survey completers in 52 days. Collected directly from patients.
This Privacy Policy Statement applies to the website www.dontbepatient.com
Name of the data controller:
DontBePatient Intelligence GmbH
Address of the data controller:
Steinstraße 27
20095 Hamburg
Germany
E-mail address of the data controller:
info@dontbepatient.com
We process your personal data on the website as follows:
When visiting the Website:
When visiting our website our host provider protocols, for every access to its servers, so-called “log file”-data like e.g. the name of the retrieved website, previously visited website (“referrer” URL), product and version information of employed browser and operating system, retrieving provider, date and time of access, employed search engines, country of access, transferred data volume, name of downloaded files and IP address.
Legal basis for the respective processing of data is article 6 para. 1 GDPR. Our legitimate interest in the storage of logfile data is based on the provision of system security including without limitation the reconnaissance of abuse. The IP address will be deleted within max. 7 days, unless it is required for a longer period of time due to a security related event, e.g. for purposes of reconnaissance or evidence.
There is no right of revocation regarding our a.m. processing of your personal data because the a.m. compelling legitimate grounds for our processing of your personal data override your interests, rights and freedoms and because our processing of your personal data also serves the purpose of a potential establishment, exercise or defense of legal claims.
Contact Enquiries
When you send us a contact enquiry, for example through an email address provided on our website, or by using contact or download forms, we store and process personal data that we need to respond to your enquiry, such as name, address, e-mail address.
The legal basis for processing your personal data in connection with contact enquiries is Article 6 (1) b) of the General Data Protection Regulation (GDPR). We store your personal data in connection with contact enquiries for as long as is necessary to respond to the enquiry.
The provision of this personal data is not prescribed by law or contract, and it is not necessary for the purpose of entering into a contract. However, if you decide not to disclose this data to us, we will not be able to respond to your contact enquiry or – if you have provided only limited contact details – we will not be able to respond to it via all available communication channels.
Registrations and subscriptions / Orders
When you register for any kind of service, including free subscription for electronic communication such as newsletters, updates and other kinds of notifications through a contact or download form, or place an order with us we process the personal data that we need to perform a contract with you, or to take steps at your request prior to entering into the contract, such as name, address, e-mail address, date of birth, chosen user name and payment details. Personal data which is collected during the registration, subscription, or order process is stored for as long as it takes to perform the contract (where applicable including the provision of a customer account), and/or to take steps at your request prior to entering into the contract, and/or to meet warranty, guarantee or similar obligations, and/or to comply with statutory archiving requirements. We send newsletters and other electronic communication only with the consent of the recipient or a legal permission. The registration through froms on our website requires a “double-opt-in procedure”, which requires that you confirm your subscription. This is necessary to prevent users from signing up using third persons’ personal information without their consent. To document this process as legal proof, our website stores the times and IP address during this process.
The legal bases for processing the personal data collected in connection with registrations and subscriptions, or orders are Article 6 (1) b) and Article 6 (1) c) of the General Data Protection Regulation. The provision of this personal data is not prescribed by law or contract. However, it is necessary to enter into the contract, i.e. to complete the registration or order, if the data is mandatory (as opposed to voluntarily) in the registration/ order process.
We do not sell your personal data to third parties.
Cookies are small text files which are saved on your computer and enable an analysis of your use of the website.
We use cookies on our website to optimize the user experience and to provide certain functions.
It is therefore in our legitimate interest to process personal data in this connection pursuant to Article 6 (1) f) of the General Data Protection Regulation. The legal basis for the processing of personal data by us in connection with cookie use is Article 6 (1) f) of the General Data Protection Regulation.
When cookies are used, we store your personal data for as long as necessary to optimize your user experience on the website.
The provision of this personal data is not prescribed by law or contract, and it is not necessary for the purpose of entering into a contract. If you do not provide this data to us, we cannot optimize the user experience for you.
Third party cookies may also be used on the website to collect information about our website and other sites on the internet. This information is then used for services such as web tracking, analyses or target audience-specific advertising. It is therefore in our legitimate interest to process personal data in this connection pursuant to Article 6 (1) f) of the General Data Protection Regulation. The legal basis for the processing of personal data by third parties in connection with cookie use is Art. 6 (1) f) of the General Data Protection Regulation.
Personal data is stored in connection with cookie use for as long as is necessary for the above-described purposes.
The provision of this personal data is not prescribed by law or contract, and it is not necessary for the purpose of entering into a contract. If you do not provide third parties with this data, the above-described purposes cannot be achieved.
You can change your browser settings so that it informs you when a cookie is sent, or blocks certain sites’ cookies, or rejects all cookies, or deletes cookies when the browser is closed. However, if your browser is configured to reject all cookies you may not be able to use some of the website functions, services, applications, or tools. You can manage and/or block advertisement cookies via the following services:
www.aboutads.info/choices/
www.youronlinechoices.com/uk/
your-ad-choices/
www.networkadvertising.org/managing/
opt_out.asp
This website uses Google Analytics, a web analysis service provided by Google Inc. (“Google”). A cookie is a small text file stored on a user’s computer and allows an analysis of the user’s use of the Website. The cookie-generated information about your use of this website is transferred to a Google server in the USA and stored there. The legal basis for data processing in connection with Google Analytics is Article 6 (1) f) GDPR.?
In the event of activation of IP-anonymization on this Website your IP-address will, within member states of the European Union or other countries adhering to the treaty on the European Economic Area, be shortened before such transmission. The full IP address will only be transmitted to a Google server in the USA and truncated there in specific, exceptional cases. At the request of the operator of this website, Google will use this information to evaluate the way you use this website, to compile reports on website activity, and to provide additional services connected to website use and Internet use to the website operator. The IP address sent by your browser as part of Google Analytics is not combined with other Google data. You can set your browser to prevent it from saving cookies, but we would like to point out that if you do this, you may not be able to use all the functions of this website to their full extent. It is in our legitimate interest to process this data pursuant to Article 6 (1) f) GDPR. Data processed in connection with the use of Google Analytics is automatically deleted after 26 months.
Under Article 21 (1) GDPR you have the right to object, on grounds relating to your particular situation, at any time to the processing of personal data concerning you in connection with the use of Google Analytics.
You can also download and install the browser plugin available at the following link (http://tools.google.com/dlpage/gaoptout?hl=en) to prevent the cookie-generated data that discloses your use of the website (including your IP address) from being collected and transmitted to Google and prevent Google from processing this data.
https://tools.google.com/dlpage/gaoptout?hl=en
On our website, we use Google AdWords Conversion Tracking from Google Inc., 1600 Amphitheater Parkway, Mountain View, CA 94043, USA (“Google”).
Google AdWords Conversion Tracking, an analytics service provided by Google Inc., uses cookies stored on your device to analyze how you use the web page accessed by clicking on a Google ad. For this purpose, a so-called conversion tracking tag or code snippet is integrated into our website or app. Once a user clicks on this ad, a temporary cookie is stored on their device. As a result, when the user conducts a customer activity of interest to us (such as shopping, signing up, completing a contact form), Google and we, the website owner, can recognize this. Google AdWords Conversion Tracking is designed to analyze which keywords, ads, ad groups, and campaigns are most successful for us. This allows us to make informed decisions about our online advertising and optimize campaigns in line with our business goals. Our legitimate interest in using Google Adwords Conversion Tracking lies in the analysis, optimization and economic operation of our online advertising.
The legal basis for data processing in the context of Google AdWords Conversion Tracking is Article 6 (1) (f) GDPR.
You can object to your collection through Google AdWords Conversion Tracking at any time. See point d. in the “Cookies” section of this Privacy Policy.
You can disable Google AdWords Conversion Tracking cookies by setting your browser’s user preferences to block cookies from the ‘googleadservices’ domain.
For more information on how Google works Conversion Tracking and Google’s privacy policy, please visit:
https://support.google.com/adwords/
answer/1722022?hl=en
If you have questions or want to exercise any of the above rights, please contact us at info@dontbepatient.com or send us mail to:
DontBePatient Intelligence GmbH
Steinstraße 27
20095 Hamburg
Germany
You have the right to lodge a complaint with the relevant supervisory authority. The relevant supervisory authority is:
Der Hamburgische Beauftragte für Datenschutz und Informationsfreiheit
Ludwig-Erhard-Str 22, 7. OG, 20459 Hamburg, Germany
Phone: +49 (0)40 428 54 – 4040
Fax: +49 (0)40 428 54 – 4000
eMail: mailbox@datenschutz.hamburg.de
www.datenschutz-hamburg.de
